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Setting up a Special Needs Trust
Episode 108

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Posted by Choose FI

Episode Guide

Episode Summary:

William shares his unique journey toward financial independence, highlighting the challenges faced as a widower and a father to children with special needs. After becoming the primary caregiver, he began to take control of his finances in 2014, realizing the need for lower-cost investment options. He discusses important financial tools, including 529 ABLE plans and special needs trusts, emphasizing their role in providing long-term support for children with disabilities. The conversation dives into the emotional and practical aspects of planning for a secure future, underscoring the importance of involving spouses in financial discussions and the necessity of proper legal guidance. Ultimately, William's story inspires hope and action among listeners navigating similar challenges.

Episode Timestamps

Episode Summary:

In this episode of ChooseFI, William shares his journey towards financial independence, highlighting personal challenges, particularly after the loss of his wife and raising children with special needs. He emphasizes the importance of proactive financial planning and practical tools such as the 529 ABLE plan and special needs trusts. William also discusses life insurance considerations and the critical role of a trusted trustee in ensuring a secure future for dependents with unique needs.

Key Topics & Takeaways:

  • Introduction to William's Journey

    • William’s experience as a widower and a father of children with autism shapes his perspective on financial independence.
  • Discussing the 529 ABLE Plan

    • The 529 ABLE plan allows individuals with disabilities to save for long-term expenses while maintaining eligibility for government assistance.
    • Actionable Takeaway: Explore the benefits of a 529 ABLE plan for children with disabilities.
  • Understanding Special Needs Trusts

    • Special needs trusts provide a way to shield more money than the limits of a 529 ABLE account while ensuring eligibility for state aid.
    • Actionable Takeaway: Consider establishing a special needs trust to protect your child's financial future.
  • Life Insurance Considerations

    • Life insurance is crucial for families with special needs dependents, supporting long-term care costs once the parent is no longer able to provide for them.
    • Actionable Takeaway: Review and adjust your life insurance coverage according to your family's needs.
  • Planning for Financial Independence and Care

    • William shares how his financial independence allows him to focus on his children’s future without the pressure of corporate work.
    • Importance of having both financial and caregiving considerations in planning.

Important Quotations:

  • “Taking charge of my investments became crucial.”
  • “Act now with the 529 ABLE plan for future security.”
  • “Prepare for life's uncertainties; be proactive.”
  • “Understand the true costs of raising children with special needs.”

Discussion Questions:

  • How can parents with special needs children best prepare financially for the future?
  • What lessons can be learned from William's approach to financial planning?
  • In what ways can life insurance be used strategically for special needs dependents?

Action Items:

  • Research the 529 ABLE plan options available in your state.
  • Consider setting up a special needs trust as part of your estate planning.
  • Reassess your life insurance needs according to your current family structure.

Keywords:

  • Financial Independence
  • 529 ABLE Plan
  • Special Needs Trust
  • Life Insurance for Special Needs
  • Personal Finance
  • Financial Planning
  • Disability Benefits

Podcast Intro: You're listening to ChooseFI. The blueprint for financial independence lives here. If you're looking to unlock the secrets to financial independence and early retirement, you're in the right place. Stay tuned and join a community of like-minded people who are getting off the hamster wheel and taking control of their lives in the pursuit of financial independence. ChooseFI, your home for financial independence online.

Podcast Extro: You've been listening to ChooseFI Podcast, where we help middle-class America build wealth one life hack at a time.

Financial Planning for Families with Special Needs: Insights from William’s Journey

Financial independence is a goal many aspire to achieve. Still, for families with special needs dependents, planning for the future requires a nuanced understanding of financial tools and strategies that support their unique circumstances. In this article, we'll delve into the practical advice shared by William during his episode on ChooseFI, focusing on effective strategies for achieving financial security for families with special needs.

Understanding the 529 ABLE Plan

One of the first steps in securing your child's financial future is to explore the benefits of a 529 ABLE plan. This savings account allows individuals with disabilities to save for long-term expenses without jeopardizing their eligibility for government assistance. The key features of a 529 ABLE plan are:

  • Tax-free Growth: Contributions are made after-tax, but the money grows tax-free and can be withdrawn tax-free for qualified expenses, which include living expenses and medical costs related to the disability.

  • Contribution Limits: You can contribute up to the annual gift tax exclusion amount without triggering tax consequences. This flexibility allows families to save at their own pace.

  • State Incentives: Depending on the state, contributing to a 529 ABLE plan can provide additional tax deductions at the state level.

Action Item:

Research the 529 ABLE plan options available in your state and ensure that you meet the eligibility requirements to start saving effectively.

Special Needs Trust: A Safety Net for Long-Term Security

While a 529 ABLE plan provides a great starting point for saving, a special needs trust can offer a comprehensive solution for financial protection and care. Here are the main advantages:

  • Asset Protection: Unlike 529 ABLE plans, which have contribution limits, special needs trusts can hold significant assets without affecting eligibility for means-tested government benefits.

  • Trustee Management: These trusts allow you to assign a trustee, someone you trust to manage the funds on behalf of your child. This ensures that the money is spent in accordance with your wishes and provides ongoing support.

  • Flexibility in Use: A special needs trust can cover a wide range of expenses, including not only health care but also education, housing, and entertainment, providing a fuller quality of life for your child.

Considerations for Setting Up a Trust

  • Selecting a Trustee: Carefully choose an individual or organization that understands the regulations governing special needs trusts and is committed to using their expertise in investment and asset management.

  • Legal Assistance: Work with a lawyer specializing in special needs trusts to ensure your trust complies with legal requirements and adequately protects your child's future.

Action Item:

Consider establishing a special needs trust as part of your estate planning to protect your child's financial future.

Life Insurance: A Crucial Element for Families

For parents of children with special needs, life insurance is not merely a safety net—it can be an essential part of ensuring your child's ongoing care even after you’re gone. Here’s what you need to consider:

  • Term vs. Whole Life Insurance: While term life insurance is often recommended for general financial planning, whole life insurance could also be beneficial for parents with special needs dependents. It provides lifelong coverage and a cash value component that can be drawn upon or passed on to your children's special needs trust.

  • Understanding Coverage Needs: Determining how much life insurance coverage you need can be complex. Take into account your child’s potential lifetime care costs and any existing government benefits your child may have access to.

Prepare for Life's Uncertainties

William emphasized the importance of proactive financial planning, which includes evaluating your life insurance needs regularly and adjusting your policy as your family dynamic changes.

Action Item:

Review and adjust your life insurance coverage according to your family’s needs to ensure that it reflects the ongoing requirements of your special needs dependents.

Proactive Financial Conversations

One notable insight from William’s experience is the importance of engaging in open dialogues with your spouse or partner about financial management. This preparedness is crucial, especially in unforeseen circumstances.

  • Shared Responsibilities: Both partners should be well-versed in handling personal finances. Utilizing tools like password managers to share access can be helpful if one partner is suddenly unable to manage the finances.

  • Creating a Legacy Binder: Maintaining a comprehensive document detailing your financial accounts, obligations, and insurance policies can ease the transition for a surviving spouse, allowing them to manage finances more effectively if necessary.

Action Item:

Start a Google Drive document or a similar resource to outline your financial accounts, roles, and responsibilities shared between spouses or family members.

Embracing Stoicism for Financial Resilience

Another powerful takeaway from William's journey is the application of stoicism in facing life’s uncertainties. Embracing a stoic mindset can equip you to handle the adversities that life brings, particularly in financial matters.

  • Acceptance of Reality: Recognizing that situations may not turn out as planned can help in making informed decisions without succumbing to unexpected stress.

  • Long-term Focus: Cultivating a long-term perspective can assist in overlooking short-term volatility in markets and instead focusing on the broader financial goals and well-being for your family.

Conclusion

Families with special needs dependents face unique financial challenges, but following the proactive strategies shared by William can pave the way for a more secure future. From leveraging the 529 ABLE plan and special needs trusts to ensuring adequate life insurance coverage and open communication, taking these steps can significantly enhance the financial security of your family. Remember, financial planning is an ongoing journey, so continually reassess and adapt your strategies as circumstances change.

William McVey, ChooseFI’s Chief Technology Officer, walks through investment options available to meet the financial demands of special needs children and the strategies he’s used to prepare for his children’s future.

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Episode Overview

William's Backstory

  • Although he is financially independent now, William didn’t put much thought into finances until 2014, after his wife passed away.
  • William was motivated to learn more about managing his own finances when he realized how much money he was spending to have someone else manage his money.

529 ABLE Accounts

  • The 529 ABLE is an account to help prepare for the financial future of children with special needs, with the same contribution limits as a 529 Education Plan.
  • Qualifying expenses include almost anything that would be required by someone with special needs to improve quality of life.
  • A 529 is a state-level account, filled with post-tax money, but withdrawn tax free.
  • Up to $100k in a 529 ABLE is shielded from consideration when someone applies for social security disability coverage.

Special Needs Trusts

  • Setting up a special needs trusts helps your special needs child by shielding even more than $100k from Social Security and state aid considerations.
  • Special needs trusts are not differentiated from any other sort of trust with regard to federal taxes, so William recommends keeping most of your assets outside of the trust, then populate the trust through a will, beneficiary designations, and transfer on death directives, after passing away.
  • Instead of designating beneficiaries in your will, you can designate a trust, or you can have a personal trust that rolls its assets into the Special Needs Trust
  • Professional trustees are available to hire, but William opted for trustees that he knows personally, and included funding in the trust for those trustees to consult lawyers and/or other advisors, should they need to.

Estate Planning and Life Insurance

  • How does William plan for his children’s future (finances, care, and management of both), beyond his lifetime?
  • How did William’s boys impact his FI number and his current investment strategy?
  • Lawyers and financial planners can be certified to manage special needs accounts and preparing for the care of special needs people.
  • William’s current living expenses are coming from his taxable account, with the hope that the special needs trust will eventually contain his pre-tax 401k and IRA converted to Roth IRA, so his boys have less taxes to pay.
  • What are the differences and cost/benefit of term life insurance versus whole life insurance?
  • If you have someone(s) who are dependent on your income, you should be insured.
  • William’s boys received Social Security survivor benefits that helped pay for their care while William was still working after his wife passed away.
  • Choosing when to leave his 9-5 job was a decision to focus more on his children, rather than choosing to stop working.
  • Although he worked for nearly 20 years as a computer programmer, William enjoys using his coding skills to build projects in which he’s personally interested, including projects for ChooseFI.